Jennifer Johannesen writes, lectures and consults on healthcare practice and policy related to patient-centred care, patient engagement and partnership in research, and critical thinking in clinical practice. Her interest in these topics arose from her experience caring for her son, Owen, who had multiple severe disabilities all his life. Owen died in 2010 at the age of 12. Jennifer’s role as caregiver and advocate led her to ask broader questions about disability and society, clinical healthcare practice, and patient involvement in healthcare improvement and health research. Specifically: why do we do what we do, and whom does it serve?
Jennifer co-hosts Matters of Engagement, a podcast about patient engagement and partnership. She holds a Master of Science in Bioethics degree from Clarkson University (Schenectady NY) and is based in Toronto, Canada.